About the role

Where you make a difference

As the Data Governance and Service Delivery Programme Manager, you will be help to lead the Data Release Team for the National Disease Registration Service (NDRS). Data held by NDRS is used to support many national and local activities spanning healthcare, public health, commissioning, patient care, epidemiology, and research. The Data Release function for NDRS, manages the release of explicitly or potentially identifiable information from NDRS, and is responsible for scrutinising applications for data. The Data Release team ensures that all releases are conducted in accordance with the rights of data subject, the legislative framework including the principles set out in the Data Protection Act 1998 and the seven Caldicott Principles.

NDRS teams manage the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS). For these population registration services we collect and quality-assure data from every patient in England diagnosed with these registerable conditions.

What's in it for you

  • A role within a dynamic team using data and digital technology to transform health and care
  • An opportunity to make a difference to how service is delivered and a positive impact on patient care and outcomes
  • Opportunities to build your experience in an environment where your work has a direct and positive impact
  • A real commitment to your personal & professional development

Why you should apply
We value the different experiences our people bring to their work at NHS Digital. We're working to create an environment where everyone can make a full contribution. We encourage applications from people of all backgrounds and abilities. Don't worry if you don’t meet all the criteria we’ve suggested – knowledge and experience you've gained in other ways might make us think about the role differently.

More about the role

  • You will be responsible for the operational delivery and development of service-level improvement of the data release function.
  • Assess data requests and research proposals requirements against Caldicott and Data Protection Principles and ICO best practice.
  • Develop and operate performance management systems for projects with a particular focus on productivity measures, quality metrics and cost reduction.
  • Deliver a range of fully assessed options for resolution of highly complex issues to drive effective decision-making, monitor interdependencies and risks between programmes.
  • Manage the ongoing development of service improvement, managing the IG framework for the programme and key data-sharing agreements and ensuring their ongoing validity.
  • Work with other data release functions, both internal and across broader government to align, develop and streamline data access and information governance.

About you

As the Data Governance and Service Delivery Programme Manager, you will be part of the Data Release Team NDRS team tasked with delivering access to data to staff within NHS Digital and the wider research community.

Some of the skills and experience we're looking for:

  • Substantial experience working in health projects or data related programmes at senior level
  • Detailed knowledge and experience of the information governance framework, including data protection, common law and the Caldicott Principles
  • Experience of managing a programme of work, including an appreciation that tasks are expected to be delivered at pace, with competing priorities but always delivered in an assured and professional manner
  • Effective communication with a range of stakeholders that demonstrates leadership and conviction
  • Ability to develop, review and implement policy for the Data Release Team, ensuring policies meet best practice and change is effectively managed
  • Understanding of NHS, local and national government and third sector cultures, structures, and policies, including devolved administrations

About us

Our work matters. You matter.

What we offer you:

  • Flexible working including part-time hours, job sharing, flexible hours 
    and part-remote set ups
  • 27 days annual leave increasing to 33 days with service
  • Ability to buy and sell annual leave
  • A generous pension (with our contribution equal to 20.6% of your earnings)
  • A range of NHS Discounts
  • Employee benefit schemes including our Season Ticket Loan and Car 
    Lease schemes

Next steps

Remote interviews will take place in using Microsoft Teams w/c 13th December. Applicants selected for interview will be contacted by email. To view further information please see the attached role profile.

Please ensure your supporting statement includes evidence and specific examples on how you meet the criteria for each of the key skills specified above. This will be used in both the shortlisting and interview processes.

All applications must be made through NHS Digital’s career site.

Please remove any personal details on your supporting statement so we can review your application anonymously.

This post is not exempt from the Rehabilitation of Offenders Act 1974. We only ask applicants to disclose convictions which are not yet spent / unspent under the Rehabilitation of Offenders Act 1974. Following an offer of employment, we will carry out a Basic Disclosure and Barring Service (DBS) check as part of the pre-employment check process.

This employment, with the exception of terms relating to pay, pay awards, job description and job evaluation, will be offered in accordance with the terms and conditions set out under the NHS Terms and Conditions of Service, which is available at:


Terms relating to pay, pay awards, job descriptions and job evaluation will be set out in the contract. Details pertaining to these elements in the contract will overwrite details on these topics in the NHS Terms and Conditions of Service, unless otherwise stated in the contract.  

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